Low Dose Naltrexone - LDN

**brodders**

This has not been in the papers as this is rather controversial simply because this is not patented for this kind of thing but only to drug addicts as the pharmaceuticals aren't prepared to pay for the clinical trials because it is very cheap to prescribe.

This has been brought up by one of the members, (sorry I forgot who it was!, all credit to you for bringing it to our attention)

Having read so many different papers on this LDN, it would appear to be absolutely beneficial to people with autoimmune diseases like endometriosis along with others types like hashimotos, crohn's and many autoimmune disorders.

[url] http://www.scottish.parliament.uk/s3/committees/petitions/petitionsubmissions/sub-09/09-PE1296B_1.pdf [/url]

[url] http://glasgowldn2009.com/2009/04/conference-video-interviews-dr-phil-boyle-fertility-specialist/ [/url] - this is a video of Dr Phil Boyle

I will put on more information on here if you are interested in finding out about this particular drug.

How does LDN work? There's a particular protein called beta endorphin whcih works as part of the autoimmune response. All of this is explained as below, I apologise in advance if you find this really complicated. Please let me know and I will try and explain this a bit better.

[url] http://www.4shared.com/file/218457163/561afbb/ldn_for_disease_prevention_qua.html [/url]

This needs to be available in the country and there should be clinical trials on it. Imagine HOW much money it could save the NHS and it works against a range of conditions. There's a hope for us who want to feel well again.

**brodders**

Another forum ,

Use Search and type endometriosis. Some interesting information how people have coped on ldn.

[url] http://health.groups.yahoo.com/group/lowdosenaltrexone/ [/url]

Might be an option for people who cannot tolerate hormone therapies.

**Val**

I dont know much about this treatment, except that my friend was on it for a while - she doesnt have endometriosis but she said it really helped her PMT, which had been a problem for a long time.
Just in case anyone is interested.
Good luck to those who try it out.
Val

**laura-jayne.wilson**

Hi All,

So I've been trying/ planning to get LDN since about January of this year....

No hormone treatments work for me at all and I also have other autoimmune problems such as Hachimoto's & Psoriasis and in general they run through my family.

I had a BIG op in Feb to remove adhesions and chocolate cyst, at the time I had been on Decapeptyl for 7 months.

Following my Op my pain was very good and I felt good, the injection was wearing off and I was great... however, each month is now getting worse than the last and this month I've already been in pain for 2 weeks and I've not even started yet!

So I HAVE to find something that will help my pain and well being that isn't hormonal and won't affect my fertility!!

My Dr is very supportive (altho only since receiving a long letter from my surgeon saying how ill I must have been) she says I am far too young to keep going for surgery so she will support me in whatever I want to try.

Unfortunately she can only send me to different consultants as she hasn't quite got the b4lls to prescribe LDN herself... ok she doesn't understand the dosage.

I went to see Endocrinologist yesterday, who my Dr thought may know more about it.

However, their opinion was that Thyroxine works for my Hachimotos so why would they try anything else....

My answer- Because this is my fertility at stake and I need help!!!

Their response- GO PRIVATE!

I did only see the registrar who did take all my notes on LDN and said she would discuss with the consultant and then write to me but she said I don't think it's worth me making you a follow up appointment.

Oh joys!

So now there's just my gynea to discuss with before I have no other choice but private.... but as I just missed an appontment (which I have sobbed over as I thought it was another date) I'm guessing it's going to be a while before I see him.

I will keep everyone updated on my progress and as I am so determined to get this drug I will also keep a blog when I do get it!!

Speak Soon Everyone

Laura xx

**Ayla77**

Hi I am on LDN for endo at the moment. Going well no major side effects bar a few headaches.
I was prescribed it by Life fertilitycare in Leamington Spa.
HTH