Do you think you may have Endometriosis, but have not yet been diagnosed?
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hmspebbles EndoLounge Goddess


Joined: 18 Dec 2007 Posts: 4108 Location: chelmsford
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Posted: Thu Nov 20, 2008 9:06 pm Post subject: The two women in my life....
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Hi Everyone, my name is Jim and i am using my partners' 'screen name' to try and tell you about what endo means to me.....
I have two women in my life now! not through choice, more by fate i guess? Who are they then, these two women in my life?
Firstly, there is 'Happy Heidi'
I met Happy Heidi some years ago now, she was bright and bubbly, full of life and at times quite feisty!! Her outlook on life was very much 'Bring it on!' Her smile and laughter was infectious, just as infectious was her kindness and genuine concern for the people around her. She always, and i mean always put others before herself. Very much a 'giver' not a 'taker'. I would challenge anybody out there to find a more loyal friend than her.
Then there is 'Endo Heidi'
I first met Endo Heidi shortly after our relationship started. She appeared without invitation, 'gatecrashing' into our lives out of nowhere. Endo Heidi is a frustrated soul, who is trying so hard to be like Happy Heidi! But no matter how hard she tries, it seems that at times she is doomed to fail. This makes Endo Heidi sad, frustrated and takes away all of her self confidence and hope for the future. Whilst she still cares for those around her, she is surrounded by people who just can't or won't try and understand her (present company excepted folks!) But like Happy Heidi, she tries all the time to put others first.
How then do i live with these two different women? what does it mean for me ?
I still see Happy Heidi, but not too often these days. It is a joy every time she does visit, but alas her visits are over too shortly. Endo Heidi on the other hand, has more or less taken up permanent residence here.
To start with i found it difficult to relate to this thing called Endometriosis. I had heard of it for sure, but i knew nothing about it whatsoever. It was a 'woman thing' and it did sometimes have the 'yuk' factor when it was explained, but it didn't seem to be enough somehow. How could this condition cause the misery that i have witnessed, the tears i have dried or the life changes that have had to be made?
I needed to know more, and to understand Endo Heidi, i could not begin to deal with this until i knew what i was up against in the rivalry for my attentions. This site, the internet in general and various books have helped, but it also clear that it seems to affect all of you in slightly different ways. I made the conscious decision to be with Heidi at all her hospital appointments, and not just sit outside, but go in with her and hear from 'the horses mouth' what Endo Heidi was up against. I am so glad that i did, no matter how uncomfortable it was, or how great the 'squirm' factor was.
It still does not explain how some misplaced cells can cause Happy Heidi to curl up in a ball in pain, walk like jemimah puddleduck, go weeks without proper sleep or fear any sort of physical contact. I have developed a pretty good Endo Radar now, and fortunately for me Endo Heidi is not very good at covering things up! I think that the truth is that as far as medicine goes these days, there is not going to be an answer any day soon. So for now i have to find ways to deal with this, and most importantly support Endo Heidi.
What can i do then to support these different but wonderful women ?
1. Be patient. Some things are worth waiting for!
2. Empathise, never sympathise.
3. Be the best listener you can possibly be
4. Be prepared to be on the end of the angry gun, for me i know that it is Endo Heidi just trying to express herself.
5. Be there....even if it takes you out of comfort zone...just be there!
6. Sex isn't everything...a cuddle means so much more sometimes
7. Educate...friends and family, in the workplace....educate!
8. Tolerance...Endo is not an excuse for bad behaviour, but it has to be considered.
9. Don't take any waffle or crap from medico's - be prepared to challenge. After all you know about this condition, you do not need blind faith!
10. Believe that it is all worth it!
I believe that with 'Both' Heidi's it is worth it. She is special to me, my little Endo Warrior.
Guys, don't be afraid get involved, educate yourselves and understand more. It helped me, perhaps it will help you.
Thanks for the chance to say what i feel...
Jim _________________ Jims Endo warrier - together we can fight to win not only for ourselves but each other.
"We don't choose this so help us fight rather than assisting us to surrender."
"I need to have a life with endo not endo have my life." |
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webmaster EndoLounge Admin


Joined: 03 Mar 2002 Posts: 409 Location: Derbyshire, UK
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Posted: Thu Nov 20, 2008 10:08 pm Post subject:
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Jim,
Would you mind if I put this post on the partners support page.... for non-members to read aswell?
Thanks,
Paul |
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hmspebbles EndoLounge Goddess


Joined: 18 Dec 2007 Posts: 4108 Location: chelmsford
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Posted: Thu Nov 20, 2008 10:11 pm Post subject: go ahead
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Paul,
No problem.....
Jim _________________ Jims Endo warrier - together we can fight to win not only for ourselves but each other.
"We don't choose this so help us fight rather than assisting us to surrender."
"I need to have a life with endo not endo have my life." |
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sue t EndoLounge Goddess


Joined: 01 May 2008 Posts: 1179 Location: Merseyside
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Posted: Thu Nov 20, 2008 11:28 pm Post subject:
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Jim you just made me cry all over my tea n biccies!!
That is a truley wonderful post - what a tremendous man you are. That post will not only inspire but support "endo partners"
Heidi - Give that man a big hug from me hunni. You are an endo warrier babe - a true fighter all the way xxxxx
I will defo be leaving this page on for hubby to read tomorrow xxx
thank you Jim xxxxx _________________ I'd rather have a bottle in front o' me than a frontal labotomy |
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webmaster EndoLounge Admin


Joined: 03 Mar 2002 Posts: 409 Location: Derbyshire, UK
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Posted: Fri Nov 21, 2008 10:18 am Post subject: Re: go ahead
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| hmspebbles wrote: | Paul,
No problem.....
Jim | Thanks Jim, I have added your message to the Partners' Page.
I agree entirely, the more we can get involved and support our partners, the better. A lot of the time it is only the partners that really take every word, emotion and pain however great or small, seriously rather than think it is all just either normal or put on.
We are here for you girls, no matter what!
Kindest regards
Paul |
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hmspebbles EndoLounge Goddess


Joined: 18 Dec 2007 Posts: 4108 Location: chelmsford
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Posted: Fri Nov 21, 2008 10:48 am Post subject:
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thank you Paul, I think it became much easier for me to understand as I now know what Jim is feeling and I can read it when I am feeling low to know I am not on my own.
Jim you are a star and my world together we can fight this not only for ourselves but for others you are my hero and I love you more and more everyday.
thank you - the biggest hug is coming you way when I see you later
heidi xxx the endo warrier _________________ Jims Endo warrier - together we can fight to win not only for ourselves but each other.
"We don't choose this so help us fight rather than assisting us to surrender."
"I need to have a life with endo not endo have my life." |
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tary1979 EndoLounge Queen

Joined: 27 Feb 2008 Posts: 985 Location: Grantham Linconshire
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Posted: Fri Nov 21, 2008 3:34 pm Post subject:
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I am so touched by a wonderfull person and to see how Jim really see you heidi what a wonderfull man but nothing less than you derserve he is so right you are a great friend and so lovely and its lovely to read such a truthful post and see how our men feel.
I hope this will help many men see what we go through and see how wonderfull and loving and kind Jim is
Thank you for sharing such a personal account with us all and i am sure we will be all printing this off and showing friends and family to see truly how hard endo effects both us and the partners.
xxxxxxxxx _________________ Life is not measured by the number of breathes we take, but by the number of moments that take our breath away. |
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Tigger83 EndoLounge Queen


Joined: 14 Nov 2008 Posts: 665 Location: Derbyshire
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Posted: Fri Nov 21, 2008 10:49 pm Post subject:
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Jim, what a beautiful post. Thank you for sharing this with us. It is a wonderful way to describe life with an endo sufferer. My hubby often says it is like living with two different women. I will definitley try and get him to read this.
Together, we can all beat the evil that is endo. xx _________________ Karen x |
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fortyniner EndoLounge Noobie

Joined: 31 Mar 2010 Posts: 7 Location: Peterborough
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Posted: Thu Apr 01, 2010 9:35 am Post subject:
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Hi Jim,
What a great post - I've just printed out the 10 "rules" and will have them above my desk to remind me. |
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