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beaglelady EndoLounge Queen

Joined: 30 Mar 2008 Posts: 625 Location: manchester
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Posted: Sat Feb 06, 2010 4:32 pm Post subject: thyroid
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Does anybody on here have thyroid trouble?
I'm asking as since my haemorraghe last Oct I am always cold I am always cold at work ad used to be the one turning down the heating. Friends and family and my acupuncturist have all commented how cold my hands and feet are and when I was talking to a family friend in New Zealand the other day who is a nurse she mentioned that I may have thyroid problems as it can also apparently cause miscarriage and problems with weight control.
Before I go to my gp and pester them yet again I just wondered if any of you ladies had this ? |
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DiSh EndoLounge Queen

Joined: 06 Jan 2010 Posts: 598 Location: Yorkshire
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Posted: Sat Feb 06, 2010 4:48 pm Post subject:
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I have hyperthyroidism and constantly struggle with my body temperature (I go hyperthermic after surgery), but its certainly not the only thing I have that is symptomatic of thyroid issues. I've a goitre as well so to a GP its obvious theres something not right (swollen neck basically as well as nodules/cysts in my throat) but my thryoid issues are possibly a little bit more clear cut than most people due to that. It was blamed for a long time on my AF issues for as it causes heavy AF, but obviously I've now been diagnosed with Endo so maybes it was both Is there any history of it in your family? I guess if you're in any doubt its very easy to have your TH and T4 levels checked with a bloodtest next time your at your GP's.
Theres another condition that causes cold hands and feet think its called Reynards or something similar. |
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brodders EndoLounge Regular


Joined: 29 Oct 2006 Posts: 40 Location: yorkshire
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Posted: Sat Feb 06, 2010 5:15 pm Post subject:
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I suffer from hypothyroidism which my thyroid is underactive.
Yes I do suffer from "cold hands and feet" most of the time. I do tend to wear several more layers of clothing than anyone else!
Yes it does cause other problems especially with the weight gain, as our metabolism slows down.
Being on hormone pills knocks my thyroid levels out of whack so Im having to keep having blood tests to check my thyroid levels and adjusting the dose.
It is worth having your thyroid checked out, as you don't want to end up like me being undiagnosed for 6 months while I slipped to coma hypothermic!
At the moment, Im feeling a bit out of all sorts because of endo pains and the mood swings. Recently I had to up the thyroxine dose as I was slightly underactive, and this has been a problem for me every time I go on the pill or hormone therapies.
Go to the docs and get yourselve checked out to be on the safe side, and yes feeling cold is one of the symptoms. |
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laura-jayne.wilson EndoLounge Champion

Joined: 05 May 2009 Posts: 207 Location: Nottingham
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Posted: Mon Feb 08, 2010 11:02 am Post subject:
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I have hypothyroidism too… mine is caused by Hachimoto’s disease (anti bodies attacking my thyroid gland)
But bizarrely my Thyroid can hold it’s own unless I’m on the pill or other hormonal treatments. I’m currently menopausal and my thyroid has gone bonkers… under active and my neck is really swelling.
Brodders- has your Doctor acknowledged that hormonal treatments affect your Thyroid? Mine says its coincidence which really annoys me!!!
I’m currently feeling on the verge of a coma because they waited for my levels to drop before putting me back on Thyroxine, despite me warning them these injections will send my anti body levels through the roof before I even started the treatment. Grrr!!
But in terms of symptoms… my first sign is the cold, if I’m outdoors I don’t just feel cold, I feel really sick with cold, literally like I’m going throw up because I’m soooo cold… I really cannot handle it at all.
Other than that, I get extremely tired, my voice gets deeper, I ache a lot, tend to feel depressed… I get granny’s tartan on my skin from sitting too close to heaters etc…. my skin, hair & nails become very dry and brittle…… and then the damn weight gain just to top it off!!
I think there’s quite a lot of woman with Endo that have thyroid problems so you should definitely get check out!
And sooner rather than later!!
Take Care
Laura xx
PS… Your body needs more Thyroid hormones during winter months so it’s often more obvious at this time of year if you do have a problem! |
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brodders EndoLounge Regular


Joined: 29 Oct 2006 Posts: 40 Location: yorkshire
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Posted: Mon Feb 08, 2010 9:42 pm Post subject:
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[quote="laura-jayne.wilson"]
Brodders- has your Doctor acknowledged that hormonal treatments affect your Thyroid? Mine says its coincidence which really annoys me!!!
I have mentioned that to my GP, so they've had to check their drug books every time they prescribe me a hormone pill.
It hasnt been the first time where I had to up the dose every time I go on the pill or hormone therapies. I honestly [b]believe[/b] when hormones are involved- they knock my thyroid levels senseless. Im currently taking 150mg after two increases of doses since December since I had been on Leostrin then stopped before starting Provera.
Really hated the provera, was only on it for a week till it affected my mood swings (I mean REALLY bad, crying without a reason and blowing my top at silly things) and other horrible side effects. Now Im having trouble controlling with my mood swings whilst not on any hormone therapies, and Im finding it difficult to suppress it. Not nice not being in control.
I read from somewhere that thyroid and endometriosis are linked somehow due to the autoimmunity and the body's response.
Im trying to finish my degree in Biomedical sciences and would LOVE to get into research especially in Endometriosis cos I love to find out what it is caused by, how it affects the body hormone wise and so on... Its matter of finding a place who does this kind of research and offer me a job which would be a tad difficult because of all the time off work that Ive had caused by the bl**dy endo for the past few years. I currently work in the NHS as a trainee scientist, however my endo has come back which made things more difficult for me.
Sorry to hijacking the thread, by going off topic a bit!
But it would be worth looking at scientific papers to find out if theres a link between thyroid and hormone therapies and so on.
[/b] |
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laura-jayne.wilson EndoLounge Champion

Joined: 05 May 2009 Posts: 207 Location: Nottingham
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Posted: Tue Feb 09, 2010 7:44 am Post subject:
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Oooh brodders, damn this disease... you could be our resident scientist!! Backing up all our observations with scientific evidence!!
If you ever need a guinea pig......
I am very much in the Autoimmune camp, and I'm not sure it's the Endo that causes hormonal fluctuations and other problems, I belive it's the other problems causing the endo in the first place.
For example I was looking into Lupus, a chronic autoimmune disease, many women with Lupus have Endometriosis AND Thyroid disorders... but they are caused by the Lupus attacking the rest of the body.
Not that we all have Lupus, just I do think there's a much bigger link to autoimmunity than seems to be recognised at the moment.
Going back to the thread though, I think every woman with any Autoimmune disorder like Endometriosis should be regularly tested for Thyroid disorders and the like.
Speak Soon
Laura |
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beaglelady EndoLounge Queen

Joined: 30 Mar 2008 Posts: 625 Location: manchester
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Posted: Tue Feb 09, 2010 12:14 pm Post subject:
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BRodders thanks for your post youir theorties sound spot on to me!
I had my blood tests this morning and will know results in a few days my gp mentioned they had been tested two years ago which I didn't know about but strongly felt that something has changed |
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brodders EndoLounge Regular


Joined: 29 Oct 2006 Posts: 40 Location: yorkshire
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Posted: Tue Feb 09, 2010 4:34 pm Post subject:
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Thanks for your kind comments,
Ive found something which is rather interesting, but you need to know the specifics which can be rather confusing.
I can't seem to attach a document onto here, argh! I'll think of something so that you all can access to it...
Right ok, Ive set up online file sharing thingy, so you can hopefully be able to access to the paper.
[url] http://www.4shared.com/dir/30701935/ffd6dc6c/sharing.html [/url] |
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brodders EndoLounge Regular


Joined: 29 Oct 2006 Posts: 40 Location: yorkshire
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