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hmspebbles EndoLounge Goddess


Joined: 18 Dec 2007 Posts: 4108 Location: chelmsford
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Posted: Sat Feb 06, 2010 6:03 pm Post subject: my hosp appoint 4th Feb
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Hi girls,
This is hard for me to write as I don't think I have ever been so scared or fed up by it all, so I hope it makes sense when it is written down and will help me get my head around it a bit more as well to.
I had a follow up appoint which was changed at the last minute and bought forward to thursday but I was assured with the same consultant I am under...
Well I got there and it took me an hr to get to the hosp, and when I got there it was not with my normal consulatant but someone I have never seen before, so I was not happy about that. I then was kept waiting for an hour which doesn't help. I had to go to my appoint on my own as my oh could not get the time off at such short notice and I could not swop my hours either so I was going in job time which did not go down well.
I got in to the room and the cons was completely different, he was not the most helpful person I have seen..... He has stopped the prostap he does not agree with it, even though it has made me feel really ill it had also helped. He is worried I might have osteo - and so no more prostap.
I am to have the mirena as he feels this will help and is meant to be great with endo... he said he would give me a while to think about it and then I could have it fitted there and then...
I went off and rang me oh and my mum and it was decided that I have nothing to lose by trying it - still not convinced even now but there is nothing else left to try either.
None of the questioons I wanted to ask were answered as I felt he wouldn't listen and he seemed intimidated that I know a lot about endo... to which I replied yes as I have to live with it of course I do - he did not like that either....
I went and said ok and we will try to fit it to day as other wise you have to have it fitted under a general and having been sedated only a few days previous the last thing I wanted was another few days off work....
I went into a little room and got changed the sister was lovely and kept reassuring me, I was not confident or comfortable as I was on my period and it just seems wrong getting examined at that time of the month
He is serted the speculum - ouch that was painful but I am brave and just kept thinking it won't take long - by this point I was in tears as I was so scared and on my own and it was hurting but I kept going. He then asked if I knew about my tilited womb and the kink in my cervix - after he said that i was sobbing uncontrollably but still I said no keep trying the nurse was almost in tears as well, but I though no already my dignity has gone keep trying. I could feel the wire being moved inside me and then he did something I have no idea what and I screamed jumped almost off the bed and that was when we had to stop as there was no way I could keep going.
I think I surprised him by how far I had tried to push myself and how brave I had been, but I am stubborn and it takes a lot to beat me but that did.
I got dressed again and went back into his room, I had stopped crying by then just, and I had to go and sign the consent form as I am now going to have to have it fitted under anestetic.... as I am an emegency case he is going to fit it on the 16th.
I then went back to work luckily my oh works at the same place but as I got into the car park he was coming out to see me as I had been gone for 3hrs and he was getting worried and I could not get out the car, I managed to waddle out and went into work and saw my friend who is a supervisor and I was sobbing uncontrollably in front of the boss I was in a hell of a state and sent home. I am due back in half an hour as I also had friday off.
I have never been so scared of anything the pain I was in I have not felt before and being tolf I had a tilited womb which has NEVER been mentioned before... WHY has it not been noticed before...
I have calmed down a bit now but seem to have even more questions to ask than I did before which I am going to throw at him before I have the annestetic...
Thank you for listening to my rant.... not something I want to go through again and can I say thanx for all the messages I have had as they got me through an awful experience and I really appreciate it.
Heidi x _________________ Jims Endo warrier - together we can fight to win not only for ourselves but each other.
"We don't choose this so help us fight rather than assisting us to surrender."
"I need to have a life with endo not endo have my life." |
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sylvia jane morrison EndoLounge Champion

Joined: 14 Jan 2009 Posts: 288 Location: RADCLIFFE, MANCHESTER
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Posted: Sat Feb 06, 2010 7:30 pm Post subject:
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hi heidi, lets hope that it works for you i had it and it helped me for a few yrs so i will keep everything crossed for you as i said before to you,i am glad that you have managed to calm down a bit after the other day,i am always here if you want a rant you have been there for me so i just wanted you to know i am always at the end of the phone,take care love sylviaxxx  |
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DiSh EndoLounge Queen

Joined: 06 Jan 2010 Posts: 598 Location: Yorkshire
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Posted: Sat Feb 06, 2010 8:01 pm Post subject:
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Gosh what an emotional roller coaster you've been on, not to mention the pain. TBH I'm glad mine went in during a lap. I hope you're not suffering too much trauma from the attempted insertion and that once you get it in it proves to offer some relief.
thinking of you xx |
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kirsti EndoLounge Goddess

Joined: 25 Feb 2008 Posts: 1184 Location: Manchester, UK
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Posted: Sat Feb 06, 2010 8:26 pm Post subject:
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Massive ((( )))
You are so brave !!! I would never have been able to get through that. Your so strong.
I hope this helps you, i really do. Got everything crossed for you.
More big (((( ))))
xxxxxxxxxx _________________ ~All Stressed Out And No One To Choke. ~
The beauty of a woman is not in the clothes she wears, the figure that she carries, or the way she combs her hair ...
True beauty in a woman is reflected in her soul. |
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goldang EndoLounge Enthusiast

Joined: 23 Jun 2008 Posts: 110 Location: Cornwall
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Posted: Sun Feb 07, 2010 6:40 pm Post subject:
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gosh it sounded like you went through so much i do not think he should of put you through that much, they also hate it when we now what were talking about it is so nice to talk to people that understand get well soon ang  |
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debbie anne EndoLounge Goddess

Joined: 06 Aug 2008 Posts: 1385 Location: nottingham
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Posted: Sun Feb 07, 2010 7:17 pm Post subject:
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big hugs honey,
i know weve been txting but just wanted to send you some hugs.
xxx |
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tessa36 EndoLounge Supreme Goddess


Joined: 19 Feb 2008 Posts: 5699 Location: Sompting, West Sussex
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Posted: Mon Feb 08, 2010 2:48 pm Post subject:
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You are so brave H-
I would never have gone through all of that and more like you did
I hope that this coil will give you some benefit  |
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alipross EndoLounge Goddess

Joined: 30 Oct 2008 Posts: 1094 Location: Leicestershire
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Posted: Mon Feb 08, 2010 7:40 pm Post subject:
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Hey sweetheart, sorry only just seen yur post. I had my coil for years and loved it. It made everything better, was not perfect just better.
Sounds like you had a really rough ride with the consultant, I would consider complaining, you should not be treated that way and he definatly should have tried to answer your questions.
A tilted womb is not something you should worry about too much. 10% of all women have a retroverted womb, the only time it should be of concern is if it "fixed" or "unmovable" as this can be an indication of PID (pelvic inflamatory disease) it can also be endo though if it is fixed.
Not sure what he ment about a kink in the cervix but I will see what I can find out.
If he is worried about osteoperosis did he suggest a bone density scan?
Keep your chin up honey, your one brave lady xx |
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nicky86 EndoLounge Enthusiast

Joined: 10 Feb 2009 Posts: 160 Location: stoke on trent
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Posted: Mon Feb 08, 2010 7:50 pm Post subject:
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Hi,
Just wanted to say you were really brave going through that. The stress of an unfamiliar and less than helpful consultant must have been a lot to deal with.
Its very painful having the mirena fitted, I felt for you reading that, I took plenty of painkillers before hand as I had some warning that it was going to be fitted.
Just to give you a bit of hope when you have had it fitted, it is quite good. Its not a cure by any strech of the imagination, but it can help to ease things. I hope it works for you.
I'm guessing the tilted uterus thing is the same as a retroverted uterus. I have one, and it can make it more difficult to get things like the coil inserted. All it means is it is tilted towards your back rather than sitting in an upright position. Not sure if it is caused by endo or just a coincidence.
I dont know why they wouldnt have mentioned it before though.
Hope you are feeling better.
Nicky
xxx |
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