Kirsty submitted this EndoStory on Wednesday 23rd September 2009 and last updated it on Tuesday 20th April 2010
"..Let's hope removing the endo has worked and I can be pain free!.."
| Name | Kirsty | |
| Age | 35 | |
| Location | Swindon, UK | |
| Click here to email Kirsty |
I was diagnosed with endometriosis ten weeks ago and also PID and chronic Cervicitis. I’m still waiting for the follow up after the Laparoscopy with the consultant and have been in a lot of pain since the op and am taking numerous antibiotics and painkillers etc.
I am unsure of the options of treatment available to me. I have been put on the pill but that hasn’t really helped. Can’t believe how it can affect your life, sex life general life...
I feel a bit lost as to where to go now? Feel like I am over reacting as so many people have it and just need some hope for the future.
I won’t always feel like this? Just try to be positive and keep smiling I guess?
Update November 2009
I have now seen the consultant and have been put on Provera. I can’t see any difference in the pain at the moment, but fingers crossed it will help!
Has anyone else had this treatment and if so was it successful?
I’m being reviewed in three months so fingers crossed, it will help.
Update January 2010
Well another Laparoscopy and endo Ablation and Adhesiolysis coming up, just waiting for the appointment date. The consultant advised that they will treat me with surgery and medication until such a time that a Hysterectomy is possible; wow great joy for the future then only another ten or so years until the menopause!
I’m not looking forward to the surgery as I remember the pain! I feel a bit fed up to be honest; fed up of the pain, lethargy and the smile pretending I’m fine, when I am completely fed up :-( How much surgery medication do we have to endure?
I am hoping and praying the operation will solve the pain, fingers toes etc crossed - sorry to vent but I am fed up of pretending I have such optimism when I don’t. Trying to be a mum, partner, work colleague, student and stuff all at once don’t need this affecting every part of my world but hey I will try to be happy that they are doing something for me I guess!
Hope you are all well. Thanks for listening,
Update April 2010
I'm going in on the 17th of April for surgery to remove adhesions and endo, just hoping this works!
Funny they are doing operations on a Saturday, but hospital confirmed it!
I hope the recovery isn't too long!
Update April 2010 #2
I had the endo and adhesions removed on Saturday 17th. I still feel pretty awful. The nurse on discharge was like it was only moderate so they removed what they could. ONLY MODERATE I wish health care professionals would consider how they word things! It does not feel only moderate when you have endo!
I feel rubbish today, tearful and emotional :-( not sure why? I'm not sure how long I will need off work but will just take it easy.
Let's hope removing the endo has worked and I can be pain free!
Thanks for listening.
Kirsty.
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