in pain and fed up

[suffering2009]

I do not have any day that is pain free anymore, whether it be aches or pains. Sometimes is tolerable and sometimes unbearable. I get so fed up because every day i hurt and no pain killers seem to work. Some days the pain gets so bad i cant cope, some days i can barely walk. It makes me feel so low, i don't think i have ever felt so low for so long. I have no social life now, rarely get through a whole week at work and get annoyed with doctors and hospitals. I worry so much about finance because of taking time off work. I am thankful for a supportive husband and family, i honestly believe i would not cope without them.

[judith]

Hi Love
My heart goes out to you but stay strong!! I've been diagnosed with severe endo and despite havin a hysterectomy in 2007 I'm in daily constant pain up my bum!! It really is a pain in the bum! I'm off work and like you worrying about taking so much time off.
You've been blessed with a lovely husband and family.something to be truely thankful for,I know what it's like to face each day in pain, sometimes getting out of bed is a real challenge but the children keep me going.
Have you tried a pain clinic, they might be able to get you the right pain meds, Are you with a gyni who specialises in endo?
My sister has to put up with me sobbing down the phone as I feel I already burden my husband enough! She tells me to Stay Calm and Carry On.........which is what I try and do.Sometimes a good cry is therapeutic!!
I hope that your pain eases and wish you many pain free days to come!!!!!
Lots of love
Jude xx

[suffering2009]

Thank you so much for your lovely supportive message. I have been back to the doctors today and got Tramadol this time. I have not tried a pain clinic and not sure where my nearest one is. I was under a endo specialist but he is off sick so now i am going to see another gyne tomorrow for another consultation so will hopefully get my lap soon. I was supposed to have had it by now but like i said my gyne has been off for two weeks now and they don't know when he will be back. Also my local hospital have refused to do the treatment so they sent my file to Wolverhampton. The other endo specialist has holiday booked so i cannot see him either. It is a nightmare but i am hopeful for tomorrow.

[naisybaby]

i know how you feel, im only 19 and yet the pain is unbearable throughout the month, yet no one else i know suffers from this especially at such a young age, im constantly tired, i find it hurts to go the loo evrytime i go and i always have back aches that are worse then average pmt back pains, i also find my womb hurts espeically is i lay on it in bed . i hate the way drs patronise me as if im lying about my symptoms but its nice to know theres other women out there suffering and struggling with the pain and its nice to know im not the only one who thinks the pain killers are a waste of time.

the doctors are taking there time with gettin back to be about the gynacologist n im startin to make myself ill stressing about it, im suppose to be findin a job but how can if i can barely move when im on a period and especially the week before, sometimes it varies and some months i suffer more pain,

do you know any good herbal treatments for the mood swings?

my mum got me evening primrose oil , black cohash, magnesium, zinc, calcium, vitamin b6 and a vitamin b complex , as she suffers from uterus didelpys, (double uterus) and suffers similar pains, which can be inherited but the doctors dont take that seriously and it almost killed my mum


argh men really have it easy compared to women, my boyfriend trys to support me but he doesnt understand, have either of you had the operation? x

[shrimp]

big hugs to you all.........

i was diagnosed in 1994 after going to docs for years for painful periods and painful sex........upto now i have had 6 laps and 5 of those with laser treatment, 19 zoladex injections, dimetriose and few others cant even remember the name of.....
went thru ivf and got non identical twin boys born c section feb 07 and bang endo reared its ugly head with a vengeance.............and also diagnosed now with fibromyalgia.
i have endo pain everyday..........and have had endo pain every singel day for years and years - the only time completly free of pain was when pregnant.............you do learn to live with it - you have to find the right painkillers that suit you, hot water bottles, wheat bags, supporting pillows to help get comfy.....
my bowel is glued down so gyny wants me to have op to remove - but high risk of ending up with colostomy bag - no can do with 2 1/2 yr old twins.....so he has referred to to pain clinic (sept) and also endo clinic in london and wait appt........not sure what they can do for me really if i am honest - secretly hope someone will say - take this and it will go away !!!...wishfull thinking or too many painkillers !!!!....

look on the treatment side of the board - there are so many meds you can take and its finding one to help you - NONE will make the pain go away FULL STOP...but alot can ease the pain so you can try and live a normal ish life...........

i take for endo diclofenic - these are anti flams, omeprazole - this lines the tummy for taking a lot of the above........tramacett - these are tramadol with paracetemol - pure tramadol makes me itch and cos i have fibro i cant f****g reach to scratch myself with extra codeine.....and for fibro amitriptaline - helps relax muscles so good for endo pain too and help you sleep - like a drunken tramp the first time i took them and citolpram - not sure doing anything really......

sorry i have babbled on - but as a golden oldie (38) compared to some of you - wanted to let you know you can and will get thru these really dark emotions......you will feel like this again many times but each time it gets easier cos you know you will come out the other side....

as for other peoples ignorance to this condition - that my dear ladies is something you will just have to put up with......dont let them get to you cos it will make you madder - your hormones will go into overdrive and you will get more pain..........deep breath and say yeh.....ok.....

chin up ladies.....
shrimp xxx